This was a Facebook post from back in July after Lucibelle's surgery.
I'm sitting here listening to the pump that's feeding my baby and the buzzes and beeps of the monitors in our room and the rooms surrounding, thinking of all of the amazing people in our lives and people we've never even met who have taken time out of their days to pray for us, pray with us, sent gift cards, posted sweet messages on Facebook, sent encouragement via text, even came to sit with us and provide support/encouragement and much needed distraction during the surgery itself bc they've been there, done that. You all have touched my heart to the core. You don't know what it's like until you watch your own baby struggle, and then I think it changes you.
Lucibelle has no idea yet, but it's going to be so neat to share with her how loved she has been by so many at such an early age. I'm going to take screen shots of all of your love and prayers and write down your names. I've never been good at keeping a baby book...in fact I don't think I even have one for her #mommyfail . But now I'll have to get one, because the memory that y'all have created for her is worthy of revisiting daily.
Something else I don't have and have never created or kept...a for real, actual prayer list. Sure, I pause and pray when I see your requests on Facebook. I also tell my husband and parents to be sure to pray...but I've never kept a list.
But like I said, experiences like this...like how we'd watch our baby turn purple and search for air with her mouth, arms flailing, eyes big as saucers and fixed on us for reassurance...like how we had to tell her "you're okay" as we shoved a tube up her nose (I would be so mad if someone told me I was okay while they were doing that to me) and down her throat...like how we saw her get poked and prodded with no understanding of what was happening...like how I had to hand my baby to a total stranger wearing scrubs and walk away as they took her to cut and staple and sew...like how I realized that we could have it so much worse as we sat listening to the hysterical wails of a young mom and dad as their baby girl took her last breath in PICU...like how I still cannot wrap my head around the kindness of other parents whose babies have endured far more than my Lucibelle, and yet they have come to us to show us love and peace and gentleness and not dismissed any of our fears even though their children have far greater battles to fight...
These experiences change you.
So I want to make a prayer list. A real one. And I want to call it Luci's List. My baby girl will known the power of prayer and what it means to pay it forward. She will probably be hard headed and outspoken (idk why I think that 😜), but you have started her out with an abundance of love and infused her with a spirit of peace and giving, already.
So will you please help me start my list...Luci's List? Please pm me or text me what your prayer needs are so that we can write these down and give them to God.
A few years from now when my baby looks at her scars from the surgical incision and from where the g-tube once was and she asks where they came from, we will tell her that these are her reminders of the many many beautiful and loving people who loved her before she knew them.
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